Patient Voices Победители 2013

  • HealthSource →
  • Диабет →
  • DiabetesMine →
  • Инновационный проект →
  • Конкурс голосов пациентов →
  • Победители 2013 года
  • Жизнь с диабетом
  • Адвокация
  • Исследования
  • Продукты
  • Интервью
  • Тестовая кухня
  • Инновационный проект

 Инновационный проект DiabetesMine

  • #WeAreNotWaiting
  • Ежегодный инновационный саммит
  • D-Data ExChange
  • Конкурс голосов пациентов

2013 Победители голосов пациентов DM_PatientVoices_Bug_2013

Мы попросили пациентов поделиться своим мнением о текущей технологии диабета и о том, что они чувствуют самые большие неудовлетворенные потребности. Мы предоставили людям свободу представлять материалы в формате видео, слайдов или фотоизображений и были в восторге от качества ответов.

Пожалуйста, посмотрите получившееся видео, основываясь на материалах, представленных на Конкурс голосов пациентов 2013 года:

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Roboto ‘; font-style: normal; font-weight: 500; src: local (‘ Roboto Medium ‘), local (‘ Roboto-Medium ‘), url (//fonts.gstatic.com/s/roboto/v18/ KFOlCnqEu92Fr1MmEU9fBxc4EsA.woff2) формат ( ‘woff2’); юникод-диапазон: U + 0370- 03FF;} @ font-face {font-family: ‘Roboto’; font-style: normal; font-weight: 500; src: local (‘Roboto Medium’), local (‘Roboto-Medium’), url (/ /fonts.gstatic.com/s/roboto/v18/KFOlCnqEu92Fr1MmEU9fCxc4EsA.woff2)format(‘woff2’);unicode-range:U+0102-0103,U+0110-0111,U+1EA0-1EF9,U+20AB; } @ font-face {font-family: ‘Roboto’; font-style: normal; font-weight: 500; src: local (‘Roboto Medium’), local (‘Roboto-Medium’), url (//шрифты .gstatic.com / с / Roboto / V18 / KFOlCnqEu92Fr1MmEU9fChc4EsA.woff2) формат ( ‘woff2’); юникода-диапазон: U + 0100-024F, U + 0259, U + 1E00-1EFF, U + 2020, U + 20A0- 20ab, U + 20AD-20CF, U + 2113, U + 2C60-2C7F, U + A720-A7FF;} @ шрифт-лицо {семейство шрифтов: ‘Roboto’; стиль шрифта: нормальный; начертание шрифта: 500; src: local (‘Roboto Medium’), local (‘Roboto-Medium’), url (//fonts.gstatic.com/s/roboto/v18/KFOlCnqEu92Fr1MmEU9fBBc4.woff2)format(‘woff2’);unicode-range: U + 0000-00FF, U + 0131, U + 0152-0153, U + 02BB-02BC, U + 02C6, U + 02DA, U + 02DC, U + 2000-206F, U + 2074, U + 20AC, U + 2122, U + 2191, U + 2193, U + 2212, U + 2215, U + FEFF, U + FFFD;} @ шрифт-лицо {семейство шрифтов: ‘Roboto’; стиль шрифта: нормальный; начертание шрифта: 400; ср c: local (‘Roboto-Regular’), local (‘Roboto-Regular’), url (//fonts.gstatic.com/s/roboto/v18/KFOmCnqEu92Fr1Mu72xKOzY.woff2)format(‘woff2’); unicode-range: U + 0460-052F, U + 1C80-1C88, U + 20B4, U + 2DE0-2DFF, U + A640-A69F, U + FE2E-FE2F;} @ шрифт-лицо {семейство шрифтов: ‘Roboto’; Font- стиль: нормальный; font-weight: 400; src: local (‘Roboto-Regular’), local (‘Roboto-Regular’), url (//fonts.gstatic.com/s/roboto/v18/KFOmCnqEu92Fr1Mu5mxKOzY.woff2)format ( ‘woff2’); юникода-диапазон: U + 0400-045F, U + 0490-0491, U + 04B0-04B1, U + 2116;} @ шрифт-лицо {семейство шрифтов: ‘Roboto’; стиль шрифта: нормальный; font-weight: 400; src: local (‘Roboto-Regular’), локальный (‘Roboto-Regular’), url (//fonts.gstatic.com/s/roboto/v18/KFOmCnqEu92Fr1Mu7mxKOzY.woff2) формат (‘ woff2 ‘); диапазон юникода: U + 1F00-1FFF;} @ font-face {font-family:’ Roboto ‘; стиль шрифта: нормальный; font-weight: 400; src: local (‘ Roboto Regular ‘), местный ( ‘Roboto-Regular’), гиперссылка (//fonts.gstatic.com/s/roboto/v18/KFOmCnqEu92Fr1Mu4WxKOzY.woff2)format(‘woff2’);unicode-range:U+0370-03FF;}@font- лицо {семейство шрифтов: ?Roboto?; стиль шрифта: нормальный; начертание шрифта: 400; ЦСИ: local (‘Roboto-Regular’), local (‘Roboto-Regular’), url (//fonts.gstatic.com/s/roboto/v18/KFOmCnqEu92Fr1Mu7WxKOzY.woff2)format(‘woff2’);unicode-range:U+ 0102-0103, U + 0110-0111, U + 1EA0-1EF9, U + 20ab;} @ шрифт-лицо {семейство шрифтов: ‘Roboto’; стиль шрифта: нормальный; начертание шрифта: 400; ЦСИ: локальная ( ‘Roboto Regular’), локальный (‘Roboto-Regular’), url (//fonts.gstatic.com/s/roboto/v18/KFOmCnqEu92Fr1Mu7GxKOzY.woff2)format(‘woff2’);unicode-range:U+0100- 024F, U + 0259, U + 1E00-1EFF, U + 2020, U + 20A0-20AB, U + 20AD-20CF, U + 2113, U + 2C60-2C7F, U + A720-A7FF;} @ шрифт-грань { font-family: ‘Roboto’; font-style: normal; font-weight: 400; src: local (‘Roboto Regular’), local (‘Roboto-Regular’), url (//fonts.gstatic.com/s) /roboto/v18/KFOmCnqEu92Fr1Mu4mxK.woff2)format(‘woff2’);unicode-range:U+0000-00FF,U+0131,U+0152-0153,U+02BB-02BC,U+02C6,U+02DA, U + 02DC, U + 2000-206F, U + 2074, U + 20AC, U + 2122, U + 2191, U + 2193, U + 2212, U + 2215, U + FEFF, U + FFFD;} @ Font- face {font-family: ‘Roboto’; 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ЦСИ: локальная ( ‘Rob oto Medium Italic ‘), местный (‘ Roboto-MediumItalic ‘), url (//fonts.gstatic.com/s/roboto/v18/KFOjCnqEu92Fr1Mu51S7ACc1CsTKlA.woff2)format(‘woff2’);unicode-range:U+02 0103, U + 0110-0111, U + 1EA0-1EF9, U + 20ab;} @ шрифт-лицо {семейство шрифтов: ‘Roboto’; стиль шрифта: курсив, шрифт вес: 500; ЦСИ: локальная ( ‘Roboto Medium Italic ‘), местный (‘ Roboto-MediumItalic ‘), url (//fonts.gstatic.com/s/roboto/v18/KFOjCnqEu92Fr1Mu51S7ACc0CsTKlA.woff2)format(‘woff2’);unicode-range:U+010024 , U + 0259, U + 1E00-1EFF, U + 2020, U + 20A0-20AB, U + 20AD-20CF, U + 2113, U + 2C60-2C7F, U + A720-A7FF;} @ шрифт-лицо {шрифт -family: ‘Roboto’; стиль шрифта: курсив; font-weight: 500; src: local (‘Roboto Medium Italic’), local (‘Roboto-MediumItalic’), url (//fonts.gstatic.com/s) /roboto/v18/KFOjCnqEu92Fr1Mu51S7ACc6CsQ.woff2)format(‘woff2’);unicode-range:U+0000-00FF,U+0131,U+0152-0153,U+02BB-02BC,U+02C6,U+02DA, U + 02DC, U + 2000-206F, U + 2074, U + 20AC, U + 2122, U + 2191, U + 2193, U + 2212, U + 2215, U + FEFF, U + FFFD;} @ Font- face {font-family: ‘Roboto’; font-style: italic; font-weight: 400; src: local (‘Roboto Italic’), local (‘Roboto) -Italic ‘), гиперссылка (//fonts.gstatic.com/s/roboto/v18/KFOkCnqEu92Fr1Mu51xFIzIFKw.woff2)format(‘woff2’);unicode-range:U+0460-052F,U+1C80-1C88,U+ 20B4, U + 2DE0-2DFF, U + A640-A69F, U + FE2E-FE2F;} @ шрифт-лицо {семейство шрифтов: ‘Roboto’; стиль шрифта: курсив, шрифт вес: 400; ЦСИ: локальная ( ‘Roboto Italic’), локальный (‘Roboto-Italic’), URL (//fonts.gstatic.com/s/roboto/v18/KFOkCnqEu92Fr1Mu51xMIzIFKw.woff2)format(‘woff2’); unicode-range:U+0400- 045F, U + 0490-0491, U + 04B0-04B1, U + 2116;} @ шрифт-лицо {семейство шрифтов: ‘Roboto’; стиль шрифта: курсив, шрифт вес: 400; ЦСИ: локальная ( ‘Roboto Курсив ‘), локальный (‘ Roboto-Курсив ?), гиперссылка (//fonts.gstatic.com/s/roboto/v18/KFOkCnqEu92Fr1Mu51xEIzIFKw.woff2)format(‘woff2’);unicode-range:U+1F00-1FFF; } @ font-face {font-family: ‘Roboto’; font-style: italic; font-weight: 400; src: local (‘Roboto Italic’), local (‘Roboto-Italic’), url (//шрифты .gstatic.com / s / формат / Roboto v18 / KFOkCnqEu92Fr1Mu51xLIzIFKw.woff2) ( ‘woff2’); юникода-диапазон: U + 0370-03FF;} @ шрифт-лицо {семейство шрифтов: ‘Roboto’; стиль шрифта: курсив; начертание шрифта: 400; источник: местный (‘Roboto Italic’), местный (‘Robo к-Italic ?), гиперссылка (//fonts.gstatic.com/s/roboto/v18/KFOkCnqEu92Fr1Mu51xHIzIFKw.woff2)format(‘woff2’);unicode-range:U+0102-0103,U+0110-0111,U + 1EA0-1EF9, U + 20AB;} @ font-face {font-family: ‘Roboto’; font-style: italic; font-weight: 400; src: local (‘Roboto Italic’), local (‘Roboto- Курсив “), гиперссылка (//fonts.gstatic.com/s/roboto/v18/KFOkCnqEu92Fr1Mu51xGIzIFKw.woff2)format(‘woff2’);unicode-range:U+0100-024F,U+0259,U+1E00-1EFF , U + 2020, U + 20A0-20AB, U + 20AD-20CF, U + 2113, U + 2C60-2C7F, U + A720-A7FF;} @ шрифт-лицо {семейство шрифтов: ‘Roboto’; стиль шрифта : italic; font-weight: 400; src: local (‘Roboto Italic’), локальный (‘Roboto-Italic’), url (//fonts.gstatic.com/s/roboto/v18/KFOkCnqEu92Fr1Mu51xIIzI.woff2) формат ( ‘woff2’); юникода-диапазон: U + 0000-00FF, U + 0131, U + 0152-0153, U + 02BB-02BC, U + 02C6, U + 02DA, U + 02DC, U + 2000-206F, U + 2074, U + 20AC, U + 2122, U + 2191, U + 2193, U + 2212, U + 2215, U + FEFF, U + FFFD;} if (document.fonts & amp; 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html {переполнение: скрыто; } body {font: 12px Roboto, Arial, sans-serif; цвет фона: # 000; цвет: #fff; высота: 100%; ширина: 100%; переполнение: скрытое; положение: абсолютное; поле: 0; отступ: 0;} # player {ширина: 100%; высота: 100%;} h1 {выравнивание текста: по центру; цвет: #fff;}. Hid {display: none;} h3 {margin-top: 6px; margin-bottom : 3px;}. Player-unavailable {позиция: абсолютная; верхняя: 0; левая: 0; правая: 0; нижняя: 0; отступ: 25px; размер шрифта: 13px; фон: url (/img/meh7.png) 50% 65% без повторений;}. Player-unavailable .message {text-align: left; поле: 0 -5px 15px; отступы: 0 5px 14px; нижняя граница: 1px solid # 888; размер шрифта: 19px; font-weight: normal;}. player-unavailable a {color: # 167ac6; оформление текста: нет;}. yt-embed-thumbnail {background-size: cover; background-position: center; background-repeat: no-repeat; высота: 100%;}. ytp-lightweight {position: absolute; top: 0; left : 0; ширина: 100%; высота: 100%;}. Exp-invert-logo #header: before, .exp-invert-logo .ypc-join-family-header .logo, .exp-invert-logo #footer -logo .footer-logo-icon, .exp-invert-logo # yt-masthead # logo-container .logo, .exp-invert-logo #masthead # логотип-контейнер, .exp-invert-logo .admin-masthead- logo a, .exp-invert-logo # yt-sidebar-styleguide-logo #logo {фон: URL без повторов (/yts/img/ringo/hitchhiker/logo_small_2x-vfl4_cFqn.png); размер фона: 100px 30px; } .exp-invert-logo # yt-masthead # logo-container .logo-red {background: URL без повторов (/yts/img/ringo/hitchhiker/logo_youtube_red_2x-vflOSHA_n.png); размер фона: 132px 30px; } @media only screen и (min-width: 0px) и (max-width: 498px), только screen и (min-width: 499px) и (max-width: 704px) {.exp-invert-logo.exp- respive # yt-masthead # logo-container {background: no-repeat url (/yts/img/ringo/hitchhiker/yt_play_logo_2x-vflXx5Pg3.png); размер фона: 40px 28px; }} .guide-sort-container {display: none} var ytcsi={gt: function (n) {n=(n || ”) + ‘data _’; вернуть ytcsi [n] || (ytcsi [n]={tick: {}, info: {}});}, сейчас: (window.performance & amp; window.performance.timing & amp; window.performance.now & amp; & window .performance.timing.navigationStart)? function () {return window.performance.timing.navigationStart + window.performance.now ();}: function () {return (new Date ()). getTime ();}, отметьте : function (l, t, n) {ticks=ytcsi.gt (n) .tick; var v=t || ytcsi.now (); if (ticks [l]) {ticks [‘_’ + l]=(ticks [‘_’ + l] || [ticks [l]]); ticks [‘_’ + l] .push (v);} ticks [l]=v;}, информация: функция (k, v, n) {ytcsi.gt (n) .info [k]=v;}, setStart: функция (s, t , n) {ytcsi.info (‘yt_sts’, s, n); ytcsi.tick (‘_ start’, t, n);}}; (function (w, d) {ytcsi.setStart (‘dhs’, w .performance? w.performance.timing.responseStart: null); var isPrerender=(d.visibilityState || d.webkitVisibilityState) == ‘prerender’; var vName=(! d.visibilityState & amp; & amp; d.webkitVisibilityState)? ‘webkitvisibilitychange’: ‘visibilitychange’; if (isPrerender) {ytcsi.info (‘prerender’, 1); var startTick=function () {ytcsi.setStart (‘dhs’); d.removeEventListener (vName, startTick);} ; d.addEventListener (vName, startTick, false);} if (d.addEventListener) {d.addEventListener (vName, function () {ytcsi.tick (‘vc’);}, false);} var slt=function ( el, t) {setTimeout (function () {var n=ytcsi.now (); el.loadTime=n; if (el.slt) {el.slt ();}}, t);}; w .__ ytRIL=function (el) {if (! el.getAttribute (‘data-thumb’)) {if (w.requestAnimationFrame) {w.requestAnimationFrame (function () {slt (el, 0);});} else {slt (el, 16);}}};}) (окно, документ); var ytcfg={ d: function () {return (window.yt & amp; & amp; yt.config_) || ytcfg.data_ || (ytcfg.data_={});}, get: function (k, o) {return (k в ytcfg.d ())? ytcfg.d () [k]: o;}, set: function () {var a=arguments; if (a.length & gt; 1) {ytcfg.d () [a [0]]=a [1] ;} else {for (var k in a [0]) {ytcfg.d () [k]=a [0] [k];}}}}; var yterr=yterr || true; ytcfg.set (“EXPERIMENT_FLAGS”, {“enable_sticker_packs_scrolling”: true, “enable_classic_creation_menu”: true, “enable_highlight_clip_creation”: true, “live_chat_replay”: true, “autoplay_pause_sampling_” use_s ” “mdx_enable_privacy_disclosure_ui”: правда, “cancel_pending_navs”: правда, “web_gel_timeout_cap”: правда, “gfeedback_for_signed_out_users_enabled”: правда, “kevlar_library_v1”: правда, “enable_gel_web_client_event_id”: правда “live_chat_flagging_reasons”: правда, “service_worker_push_enabled”: правда, “send_ad_playback_context_on_promoted_video_for_web “: правда,” use_webrtc_ingestor_handshake “: правда,” interaction_logging_on_gel_web “: правда,” enable_creator_highlights “: правда,” web_always_load_chat_support “: правда,” use_push_for_desktop_live_chat “: правда,” interaction_screen_on_gel_web “: правда,” desktop_polymer_video_masthead_always_use_responsive_iframe “: правда,” kevlar_library “: правда, “enable_html5_conversion_ve_reporting”: правда, “desktop_polymer_video_masthead_wta_support”: правда, “desktop_pyv_on_watch_overrid e_lact “: правда,” lact_local_listeners “: правда,” botguard_periodic_refresh “: правда,” web_android9_useragent_fix “: правда,” enable_ve_tracker_key “: правда,” log_web_screen_end “: правда,” ignore_empty_xhr “: правда,” enable_watch_next_pause_autoplay_lact “: правда,” warm_load_nav_start_web? : правда, “live_chat_top_chat_window_length_sec”: 4, “desktop_companion_wta_support”: правда, “watch_next_pause_autoplay_lact_sec”: 4500, “log_window_onerror_fraction”: 0.1, “enable_webcam_dynamic_poll_period”: правда, “service_worker_push_home_page_prompt”: правда, “desktop_pyv_on_watch_via_valor”: правда, “enable_docked_chat_messages”: истинная “enable_desktop_polymer_video_masthead”: правда, “enable_desktop_polymer_video_masthead_upgrade”: правда, “service_worker_push_logged_out_prompt_watches”: – 1, “live_chat_increased_min_height”: правда, “use_watch_fragments2”: правда, “autoplay_pause_by_lact_sec”: 0, “desktop_notification_set_title_bar”: правда, “desktop_image_companion_wta_support”: правда, “live_chat_use_new_default_filter_mode”: правда, “enable_live_studio_ux”: правда, “youtubei_for_web”: т Рит, “remove_web_visibility_batching”: правда, “web_logging_max_batch”: 100, “enable_verified_author_highlights”: истинный “attach_child_on_gel_web”: истинный “service_worker_push_force_notification_prompt_tag”: “1”, “web_gel_lact”: правда, “enable_playlist_visibility”: правда, “desktop_shopping_companion_wta_support”: правда, “consent_url_override”: “”, “enable_webcam_dvr”: правда, “html5_serverside_pagead_id_sets_cookie”: правда, “desktop_polymer_video_masthead_mute_ad_support”: правда, “autoplay_pause_by_lact_sampling_fraction”: 0.0, “enable_midroll_ad_insertion”: правда, “live_chat_message_sampling_rate”: 4.0, “enable_live_studio_url”: истинная “service_worker_enabled”: правда, “live_chat_flash_money_button_on_super_chat_delivery”: правда, “log_vis_on_tab_change”: правда, “player_swfcfg_cleanup”: правда, “enable_classic_encoder_pointback”: правда, “enable_afv_div_reset_in_kevlar”: правда, “interaction_click_on_gel_web”: правда, “clear_web_implicit_clicktracking”: правда,? service_worker_push_prompt_cap “: – 1,” log_sequence_info_on_gel_web “: правда,” very_optimistically_create_ gel_client “: правда,” is_browser_support_for_webcam_streaming “: правда,” enable_webcam_scheduling_hint “: правда,” kevlar_library_v1_edu “: правда,” highlight_clip_creation_ftue_display_option “: 0,” web_use_beacon_api_for_ad_click_server_pings “: правда,” service_worker_push_watch_page_prompt “: правда,” cold_load_nav_start_web “: правда,” live_chat_top_chat_split? : 0.0, “live_chat_inline_moderation”: правда, “player_unified_fullscreen_transitions”: истинные “service_worker_push_prompt_delay_ms”: 3888000000, “service_worker_push_prompt_delay_microseconds”: 3888000000000, “web_system_health_fraction”: 0.01, “enable_webcam_scheduling”: правда, “debug_forced_promo_id”: “”, “live_chat_replay_milliqps_threshold”: 5000, “desktop_videowall_companion_wta_support”: правда, “autoescape_tempdata_url”: правда, “ad_to_video_use_gel”: правда, “enable_more_related_ve_logging”: правда, “web_gel_debounce_ms”: 10000, “optimistically_create_transport_client”: правда, “retry_web_logging_batches”: правда, “video_to_ad_use_gel”: правда, “pass_biscotti_id_in_header_ajax”: правда, “live_chat_continuat ion_expiration_usec “: 300000000,” same_domain_static_resources_desktop “: правда,” log_web_meta_interval_ms “: 0,” is_browser_supported_for_live_studio_streaming “: правда,” desktop_notification_high_priority_ignore_push “: правда,” prefetch_comments_ms_after_video “: 0,” desktop_action_companion_wta_support “: правда,” live_chat_unicode_emoji_json_url “:” HTTPS: / /www.gstatic.com / YouTube / IMG / Emojis /emojis-svg-1.json?, “fill_submit_endpoint_on_preview_web”: правда, “service_worker_push_home_only”: правда, “kevlar_guide_refresh”: правда, “app_settings_snapshot_min_time_between_snapshots_hours”: 24 , “show_account_link_ari_double_dialog”: правда, “kevlar_library_profile_column”: правда, “desktop_pyv_on_watch_missing_params”: правда, “third_party_integration_ari”: правда, “enable_youtubei_innertube”: правда, “desktop_polymer_video_masthead_session_tempdata_ttl”: 30});
??
????Технология диабета: что действительно нужно пациентам – YouTube
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Each of our winners received a scholarship to attend and participate in the 2013 DiabetesMine Innovation Summit event that took place at Stanford School of Medicine on Nov. 15, 2013.

Our Winners, in alphabetical order:

  • Christel Aprigliano, a type 1 D-blogger and active advocate who submitted a compelling appeal for a holistic approach to diabetes care.
  • Simon Carter, longtime type 1 himself and parent of a T1 child also living with celiac, and creator of a new ?prediction system? called ManageBGL.com.
  • Corinna Cornejo, a type 2 who works with the Diabetes Hands Foundation, and created an excellent presentation on the need for information, not just data.
  • Allison Dunning, type 1, who’s passionate about the use of “big data” to inform improved diabetes care for us all.
  • Melissa Lee, another active type 1 D-blogger who presented an innovative idea for an “Insu-litmus” test to help us gauge whether our insulin is still effective.
  • Kyle McClain, a software developer diagnosed with type 2 in 2010 who “immediately began looking for tools to help me manage my diabetes.” Not liking what he found, he began creating his own tool called Gludi.
  • Julia Neese, a type 1 from Germany, who presented a very intelligent assessment of three key themes: bionic pancreas, data management, and affordability.
  • Shelley Spector, a type 1 herself and devoted D-parent, who presented many good points on engaging kids, issues with D-teens wanting to hide it, and how hospitals and payers can benefit from providing us with better tools up-front.
  • Scott Strange, well-known type 1 D-blogger, who focused on the need to emphasize the psychological side of diabetes: “The mental and emotional side for me has been a lot worse than the physical side,” he says.
  • Amy Tekrony, a Canadian type 1 and aspiring endocrinologist, who created a compelling video on the pressing need for changes in diabetes technology.

CONGRATULATIONS and THANK YOU for your interest and participation, all!

That goes for our diabetes tech survey, as well; at final count we had nearly 900 participants in that research project!

Results were presented at the 2013 Summit, and also published in detail here.

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